Family Of Two

Entries from May 2008

Full Disclosure…

May 31, 2008 · 5 Comments

I really don’t think I have done justice to just how bad Jacob’s situation was.  Partly because I was just so overwhelmed, and partly because I just didn’t want to think about it.  Still, in the interest of full disclosure, and so that there is a written record I am going to do it today.

We had an idyllic weekend.  On Saturday we went for a walk in Frick Park.  We spent 2 hours just walking along the trails, and discussing our plans for the future.  Plans for our next cycle were discussed.  The plan was to remove my Nuva Ring a week prematurely so that if I wasn’t pregnant that AF wouldn’t be here for our anniversary.  Or if I was pregnant, and subsequently miscarried that I wouldn’t have the memory of finding out I was pregnant on our anniversary.  So Yes, we would move things forward a week…by Monday we had already had a full weekend, and weren’t really looking forward to ending it by going back to work on Tuesday…but boy did I wish that were the case.

You already know the story of the original ER visit, so I won’t go into that again…

At 2 a.m., or shortly there after on Tuesday I heard Jacob in the bathroom.  His coughing and choking was muffled because he had closed the door to our bedroom.  As soon as I heard him I jumped out of bed.  I couldn’t find my glasses, but I threw open the door and asked “how bad?”  He croaked out “Bad”  but in all honesty that was an understatement.  Bad would have been the amount of vomiting that had occured at his mothers.  This however was life threatening, and I knew it as did he.  I quickly threw on clothes.  I don’t know how, but Jacob had the presence of mind to do the same.  He then lay down on his office floor, while I ran down stairs to open the door and turn on the porch light per 911 instructions.  Jacob then crawled down the steps and lay instead on the living room floor.  I went outside, and answered the remaining questions to the 911 operator.  It is then that I realized how frustrating it is living on a township line.  “What is your address?”  I told him the mailing city of Turtle Creek, to which responded isn’t that Wilkins Twp?  Jake at this point has crawled to the front porch because he needs to vomit again.  “I don’t care what you consider this just get here, my husband is dying”

I called my mother in law, and told her Jacob was being taken back to the hospital and she said “I am not going to go, but Dan will”  I was angry in that moment, but I didn’t care.  Jacob was my priority, she would be dealt with later.  I then called my dad and let him know what was going on.  When Jacob began vomitting again over the side of the porch I called 911 again, but then saw the ambulance rounding the corner.  It was then that my MIL called me back and said she was coming after all.  The EMS crew pulled into the driveway and immediately began to assess the situation.  I blamed myself for this I knew he vomited blood Monday afternoon, and yet I gave him two Excedrin which have Asprin in them.  This was my fault, and I wanted them to know it.

The ride in the ambulance was a blur.  What I do remember is that his bp had dropped to 97, and that the female ENT said “He’s vomiting again, and its red.  I want to go lights”  It was then that the male ENT called dispatch and said his ambulance number, enroute to Forbes “We are upgrading to E1, we are going lights ETA 7 minutes”  Normally it takes 20-25 minutes with traffic to get there, and about 15 with none.  We made it in 1/2 that time.  When we got to the hospital, they told me to go to registration and Jacob was taken to Trauma room 20.  It was the largest ER room I had ever seen.  There was room for 3 nurses, myself, and his parents once they arrived with room to spare.  There was even a crash cart on stand by, but I wouldn’t recognize this until later.

When I went back to his room, he was still profusely vomiting.  The ER doctor was in the room, two IV lines were being placed, and his history was being repeated again my me.  He was shocked to learn that West Penn had not done an endoscope.  He then told me that they were  calling in Dr. Patell, and that they needed to put an NG tube down Jacob’s throat.  He then advised that he would need a transfusion depending on how his blood work came back.  Fortunately, or unfortunately when it did it was normal.  Counts were normal, hemocrit was normal, everything pointed to a relatively normal blood supply even though he was vomiting, and was en route to loosing 1 liter of blood (or the equivalent of 2 pints).  As they placed the NG tube, I watched in abject terror.  I was paralyzed by fear both from watching a tube being placed into his nose, and watching him continue to vomit while trying to catch his breath while the tube was going down.  At this point I heard my mother in laws voice–I told Jacob “they are here”  The nurse told me “you can stay, but they can’t”  I find that odd now.  Did they think they were going to loose him and didn’t want me far away?  I became angry then as the blood bank person continued to attempt to get a postive ID on Jacob even as he is projectile vomiting.  I yelled at him, as did the nurse “Its him”  but still they made Jacob spell his name, and give his middle initial.  It was only then that I joined his mom and dad in the waiting room.  His mom reached out and tried to comfort me, but I backed away.  I knew if she touched me I would loose it.  If she touched me, this was read.  If she touched me, I would crumble and I needed to be strong for Jacob.

It seemed like hours passed, but in reality it was only 1 hour between arrival and the placement of the NG tube, and an additional 1/2 hour before Dr. Patel arrived to do his emergency endoscope.  They told me that it would take an hour, and that I would need to wait in the waiting room.  That hour seemed like days.  Every time I head the security door woosh open I would look apprehensively for the doctor.  Once it was the nurse who came out and said “he was doing well”  but then nothing.  Finally after 50 minutes I had them buzz me back again.  The proceedure was over, and Jacob was alive.

His BP had gone back, but still was in the low 100’s.  He was going to be taken to the ICU.  Dr. P said he was very ill, and that we had a 50/50 chance of this healing without additional surgery.  The first 48 hours were critical.  If the clot that has stopped the bleeding moved within that time, he could begin to bleed again.  If he bled again we were looking at a laparotomy.  If things got worse the surgeon told me, they would simply remove the stomach.  I wanted to stay with him, but since they were taking him to the ICU I couldn’t.  Instead I came home and began making the phone calls that needed to be made, but first I had to hose the blood off the porch, and then deal with the bathroom.  I tried to lay down, but I couldn’t get the vision of Jacob with a tube in his nose, and vomiting around his NG tube.  My legs were paralyzed.

What you need to know about Jacob is that he is a very active, and independent man.  So when I saw him in the ICU, and he could barely speak more than a croak at at time, or raise his hand more than a few inches from his bed I knew how bad things were.  He had some color, as opposed to being completely colorless just hours before, but we were still not out of the woods…hell, we had barely begun the trail on the way in.

That day my life was marked by hours.  “Its been 12 hours since his last bleed”  or “its been 16 hours since.”  Yet even though we are talking in hours, it seemed like it was days.  Every visit to Jacob i could see he gained strength, but he was still far from coming home.  I knew that until we hit the “magic number” of 48 that anything could happen…and so began the week that really has changed my life…

Categories: Uncategorized

“You Two Love Birds Go Home”

May 30, 2008 · 4 Comments

We had the most delightful resident who was called in to consult on Jacob’s case.  Sadly I do not remember he name, but she was just a delight.  As I mentioned when I wasn’t willing to crucify West Penn, the nurse there was shocked at the “bond” if you will between Jacob and I having been married and together for so long.  I guess being together for so long its something we just “do”, but when others point it out, its really nice to hear.  Yesterday when we knew he was doing better, but still weren’t sure when he would be home the resident came in, and was talking to us.  It wasn’t like I was crawling in his bed, or touching him appropriately or inappropriately…but she said “Wow, you two are a great couple”  Then today when she came in she said “Oh good, you’re here.  I have great news you two love birds can go home”   After we went through the discharge instructions from her stand point, she said “You two are great together never change”

Over and above the warm and fuzzy feelings, I am ecstatic that Jacob is doing so well.  TMI, but he has had a NORMAL BM.  His first was black and tarry, but they said that was normal because he had to digest the blood that he had swallowed from Monday.  Those after were normal.  His appetite is great.  He wanted a bagel after he had his breakfast…but the Haymaker Cafe wasn’t open at that time.  He will have to take Nexium for life, but that is a small price to pay for his health.  We have ZERO restrictions once he is feeling like himself.  He can go back to work on Monday if he wants too!  But I think we will play that by ear.  He is asking for grilled cheese for lunch, which I will be happy to oblige because for the first…no second time in a week I am hungry.  The first time was last night at dinner when the hospital brought me a tray so I could have dinner with Jacob.

I am going to try to forget, but I doubt I ever will…I just can’t believe how close I came to being a 33 year old widow.  Even the doctors were amazed at the volume of blood loss given that he had, and still has no risk factors.  I don’t know if this was a test or not, but if it was I hope we passed.  For before when I thought we had gone through the worsts we could ever go through, boy was I wrong.  This trumps any experience I have singularly experienced, or that we collectively have endured.  I just hope that given our less than 3% chance of a re-bleed that we never experience it again.  Of course…going after the ER doctor for mis diagnosis and failure to treat I suppose we will have to r experience it again…but at least he survived this.  Thank God for the ENT’s who were wide awake at 2 a.m., and thank God for Forbes Regional and their doctors because they did everything right, and while I may not have always agreed with bed side manner, or like an answer I am so glad that my Jacob is alive…and that apparently even in adversity our love for each other shines through above the worry and concern.

Thank you everyone for your comments, emails, and concern.  I am pleased to say that as soon as Jacob is feeling 100% that we will return this blog to its regularly scheduled programing.

Categories: Doctor Doctor · Husband and Wife

Almost Home!

May 29, 2008 · 6 Comments

I am PLEASED…no, that is an understatement, I am ELATED to report that Jacob is doing 5000% better!  He had a re scope done today, and it shows that the clot is gone.  There is little chance of a re bleed.  He basically has 2 ulcers that were side by side.  The doctors say it is unusual for them to bleed to the magnitude that Jacob did.  The resident calls him an enigma because he is not a smoker, not a drinker, and not a drug user.  They suspect that this was caused by caffeine, but even that is speculative.  He is however to give up his two cans of beer a year.  Yes I said a year.  He also has to switch to Tylenol instead of Aleve.  Plus he is NOT allowed to have regular soda.  EVERYTHING he drinks must be decaf.

The GI doctor who did his scope in the ER was who did his scope today.  He told him “you were very sick when you came in, you didn’t realize how critical you were”  Just typing that again makes me cringe.  I KNOW how close I came to loosing him, and I don’t want to relive that again.  The doctor would like to see him again in 6 weeks.  He will come home with Nexium, and thats it.  No additional restrictions.

He is groggy from his twighlight sleep, but he was eating a turkey sandwich when I got back to his room from a quick trip home.  Dinner will be salsbury steak.  So he is off of restrictions.  Thank heavens.  He had the transfusion IV removed, and is on NO drips.  He does have a hep lock in “just in case”  but we aren’t going there!  We are thinking positively.  We are truly blessed.

We are HOPING that he will go home tomorrow…but if not then, then Saturday.  Oh how I can’t wait.  i will sleep so much better!

Categories: Uncategorized

Can I Get Any More Tired?

May 28, 2008 · 4 Comments

I have in law updates…she thinks she trumps me!  Oh how I don’t think so.  SIL came down from the cow farm…and no that is not an insult…she is a cow farmer.  Of course since SHE was there, in MIL’s eyes I just was useless and should have gone away.  I however made if VERY clear to the phlebotomist, and the nurse (who is a sweetie) that I am “in charge”  Them MIL says “but I am his mother”  Yes, but on July 7, 1998 I became his wife.  I win.  Urgh.  I was still graceful, and just asked the questions that needed to be answered, and left the rest alone.

So here is the email update I sent out:  Please forgive typos…and incorrect grammar  I am seriously exhausted.  I keep thinking its Tuesday…here its Wednesday…and I still have a load of laundry to do so that I can take Jacob his clean underwear that he is requesting.  Then…I will pass out…Lord knows, I don’t even call it sleep.

UPDATE:

Jacob was moved out of ICU tonight.  Thank GOD those nurses were USELESS.  If I had a question the answer was “I don’t know”  The nurses on his new unit answer EVERY question I have even if its stupid.  Tammy, his night nurse even offered to let me spend the night and offered to let me come home and come back if I wanted too later.  What a doll!  All nurses should be like her!!!  SHe was FABULOUS.

Ok…so Jake had the NG tube removed today, and was then transfused with 1 unit of blood.  Once that was complete they moved him to his new room.  At about 7ish, his GI doctor came in, and said he could have liquids.  He started w/Jello and Ginger Ale then had a cold pop.

Tomorrow afternoon they are going to rescope him, and then they will start him on solid foods which to be honest PANICS me to no end.  I don’t want him to start re-bleeding.  They tell me that is slim or else they wouldn’t have started him on liquids.

So we are looking for a possible discharge of Saturday…but even though we miss him terribly here I say keep him as long as he needs to get well!  HOpefully tomorrow night we will have a diagnosis for why, what and how this bleeding occured…well we know the how…be need the why and what.

Thanks for the support all!

Categories: Uncategorized

Silence Is Deafening…

May 27, 2008 · 5 Comments

I am pleased to say that Jacob is STABLE!  I spoke the resident tonight who has been on the unit all day.  Now come the big IF’s.  IF he remains stable in blood pressure, hemaglobin/hemocrit, and has no nausea they will remove the NG tube TOMORROW!  Oh, wait this is a BIG IF…IF when they lavage the NG tube its CLEAR.  There can be ZERO blood output or red fluid at all.  Ok, so lets assume that this all goes well…the NG tube comes out.  Then they will move him to a regular room!  No more 30 minute visits every 3 hours.  They will then start him on a liquid diet, and if he sustains that with NO BLEEDING, and NO NAUSEA then they will move him to a bland food diet.  From there they will send him home in a day or so.  Thank heavens!

Its amazing though, I am so lonely.  I have the dog, and the cat but I am lonely.  Now don’t think that Jacob and I are attached at the hip.  No, often times he is upstairs playing WOW, or is watching sports on TV while I am upstairs in our bedroom w/my lap top.  Yet he is HERE.  He is available to me.  This is just a horribly lonely feeling.  I come home and its quiet.  There is no ambient noise coming from any corner of the house.  I miss his laughter that would often pierce what I considered quiet up until tonight.  Oh how I can’t wait for him to come home.

I told him tonight that I can’t wait for him to come home.  I can’t wait for him to yell at me because the dog chewed through a pair of his underwear.  For us to “argue” over what to have for dinner.  Just to be here.  Especially since tonight I wiped away his tears while he told me how scared he was.  I promised him, that I would never lie to him.  I told him at 2 a.m., I thought I was going to loose him, that I was going to be a widow.  Yet, here at that time at 8 p.m. I could almost 100% promise him that he would be coming home healthy and happy.

Please let it be…because the silence is deafening…

Categories: Husband and Wife